Intracranial Hypertension Registry referral information for physicians

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Resource Type

Properties

1. Resource Description

   The IH Registry is open to patients with a confirmed diagnosis of idiopathic intracranial hypertension (pseudotumor cerebri, benign intracranial hypertension, primary intracranial hypertension) or secondary intracranial hypertension.

2. Resource Description

   There is no cost to patients for joining the IH Registry or to their physicians for submitting health information. The registry does not generally have funds available to compensate physicians for their time or out-of-pocket costs. There is a cost-recovery fee for providing IH Registry Data to researchers; the amount varies with the complexity of the specific request. Relevant documents can be requested by email. Contact ihreg@ohsu.edu for the necessary forms or more information.

3. Contact

   Golden, Sara, B.S.

4. Service Provided by

   Intracranial Hypertension Registry

5. Website(s)

   http://www.ihrfoundation.org/