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Couple perceptions of fibromyalgia symptoms protocol

eagle-i ID

http://ohsu.eagle-i.net/i/0000012f-c15f-dca0-a63c-45b480000000

Resource Type

  1. Protocol

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  1. Resource Description
    Fibromyalgia (FM) is a common, debilitating and costly chronic pain syndrome characterized by widespread pain, fatigue, and poor physical function. FM affects both the patient and family unit, in particular the marital relationship. Patients and spouses struggle to manage symptoms and adapt to the unpredictable nature of the syndrome based on their individual perceptions. In addition, the stigma that often accompanies chronic pain such as FM, creates a heightened need for congruence and symptom recognition within the marital couple. When perceptions are incongruent it can lead to patient feelings of invalidation, and poor couple well-being and health. Such incongruence can also be problematic for decisions made by the couple regarding treatment, employment and role changes. The proposed exploratory study is significant and innovative because it will address many of the gaps in the literature by exploring patient-spouse incongruence in perceptions of patient pain, fatigue and physical function in 200 FM couples. Understanding ways in which FM patients and spouses disagree in their perceptions and identifying those couples most at risk will enable interventions to maximize the health and well-being of patient and spouse, and balance the needs of both members of the couple. This study has broad implications for understanding incongruence in other rheumatic samples and in the design of future interventions and management plans at the level of the couple.
  2. Contact
    Hiatt, Shirin Ojaghi, M.P.H., RN
  3. Used by
    Karen Lyons Laboratory
  4. Author
    Lyons, Karen, PhD
 
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